Tag Archives: FTD; Frontotemporal Degeneration; Frontotemporal Dementia;

THE FTD Warrior

Rich wrote this a couple of days ago. He rides an emotional roller coaster all day long. It is often tortuous for him. It is really hard to watch and I often feel helpless to stop his pain. As I … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , | Comments Off on THE FTD Warrior

Music sometimes helps Rich to recenter when his emotions are all over the place.

Posted in Uncategorized | Tagged , , , , , | Comments Off on Music sometimes helps Rich to recenter when his emotions are all over the place.

Video honoring Rich and increasing awareness of FTD

Rich and bv FTD (Behavioral Variant Frontotemporal Degeneration) Hi Everyone, I know I have needed to do some more posts in my blog. I’m sorry, but FTD has become a huge issue of time, exhaustion and uncertainty. I made this … Continue reading

Posted in Uncategorized | Tagged , , | 2 Comments

Allison’s Story: “My Papa and FTD”

My Papa and FTD My granddaughter, Allison (age 7), loves to write stories. Click on the title above to read the story she wrote about Rich, my husband and her Papa, who struggles with Frontotemporal Degeneration.

Posted in Uncategorized | Tagged , , , , , | 1 Comment

LIVING WITH DYING

Rich shares a common diagnosis with the man in the linked article below, Howard Glick. They have become friends. Howard’s attitude and resilience have already begun to help Rich take a new look at his own disease, Frontotemporal Degeneration. It … Continue reading

Posted in Uncategorized | Tagged , | Comments Off on LIVING WITH DYING

THE NEW NORMAL

Many people have been asking me why I haven’t posted anything on the blog in awhile. I’ve been giving that some thought and decided it is because I am working hard at accepting the “new normal.” The irony of the … Continue reading

Posted in Uncategorized | Tagged , , , | Comments Off on THE NEW NORMAL

POST BY RICH: The Power of Prayer, Meditation and Positive Thinking

I am not a “formally religious” person, however I follow a spiritual path and believe in a higher power. Since I have been struggling with this illness, family and friends have told me with extreme sincerity, that they pray for … Continue reading

Posted in Uncategorized | Tagged , , , | 2 Comments

The Journey into FTD

Many people have asked how we came to this diagnosis of Frontotemporal Degeneration (FTD). It’s been a long and difficult journey, the telling of which may help others facing similar situations. Rich and I have been together since we were … Continue reading

Posted in Uncategorized | Tagged | 1 Comment

Frontotemporal Degeneration

Posted in Uncategorized | Tagged | 2 Comments