It is difficult for patients with FTD, and their caretakers, family and friends, to adjust to “the new normal” of life with this disease. The roller coaster of emotions is absolutely mind-boggling. When people ask me how Rich is doing, I usually say that it could be different from how he was doing five minutes ago.
Personally, I think my husband is “a stud” for simply living the moment-to-moment battle of FTD. It is so amazingly bizarre, unpredictable, catastrophic, tortuous and the most beautiful tribute to internal strength that I have ever witnessed… or experienced.